UNDEREXPOSED EXHIBIT NOW SHOWING!
It’s official! UNDEREXPOSED within four walls of severe m.e photography exhibit has launched today – the 8th of August in Australia – in honour of Severe ME Awareness Day. The aim of this photography exhibit is to spread awareness and raise funding for research and patient support. Please share widely to help expose the devastation of the severe form of this disease.
Watch exhibit trailer above.
UNDEREXPOSED is dedicated to Whitney Dafoe, an award winning photographer and film maker before developing an extremely severe form of myalgic encephalomyelitis, also known as chronic fatigue syndrome, or ME/CFS. Whitney’s bedridden, attached to a feeding tube and an intravenous fluid line. He hasn’t spoken a word, eaten a crumb of food or sipped a drop of water in 8 years.
Since Whitney’s diagnosis, his father, Ronald Davis, a professor of Biochemistry and Genetics and award winning researcher, has devoted his life to finding a cure for ME in a desperate bid to save his son and millions like him.
In supporting Whitney’s father’s research, we are asking expo visitors to consider donating to Open Medicine Foundation. OMF supports collaborative medical research to find effective treatments and diagnostic markers, as well as supporting health care education for this highly debilitating, multi-system disease.
I would like to thank all of those affected by severe ME from around the world for taking the photo challenge. Not an easy task for those who are incredibly unwell and bedridden in darkened bedrooms. The photo submissions were both mind blowing and heartbreaking.
While compiling all of the photos for this exhibit, I felt a powerful sense of spirit, strength and solidarity. I was reminded of why I started an expo showcasing creations of those expressing how ME has impacted their lives. ME has been underexposed in healthcare systems, government policy and general society for far too long!
See ME Expo Website Launch
In other See ME Expo news…I’m pleased to announce the official launch of the See ME Expo website with two ‘featured artist’ exhibits coming soon!
Shiloh Moore and Christina Baltais are both talented artists and writers whose lives have been largely limited by myalgic encephalomyelitis. The two exhibits will be launched over the coming months.
